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Summer Foundation Focus – June

Welcome to the June issue of our bi-monthly newsletter.

Featuring news about recent significant developments in our work to ensure young people stuck in aged care, or at risk of entering aged care, can make an informed decision on where they want to live.

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The Down to 10 Day campaign began campaigning in March 2022, advocating for faster, more accurate decisions on housing and support for NDIS participants.

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A day after the latest Federal Budget the Summer Foundation’s Dr George Taleporos interviewed the Minister for the NDIS Bill Shorten about what it will mean for people with disability.

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Ten researchers from the Summer Foundation participated in the Annual Brain Impairment Conference in Darwin.

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Tell us about yourself?

I’m almost 36, I have Cerebral Palsy. I enjoy doing diamond artwork, watching series on Netflix and I like to go shopping and meet friends for coffee. I’m a bit of a homebody sometimes.

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Short-term and medium-term accommodation (STA and MTA) for people with disability is in undersupply, according to the 4th edition of the Listings Snapshot report released by the Housing Hub.

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There are a number of myths associated with accessible housing that create barriers to finding the right home for people with disability.

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The Summer Foundation and our social enterprise, the Housing Hub, host a range of face-to-face and online workshops for a wide range of audiences Australia-wide.

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Source: The Australian – Sarah Ison | Photo: Martin Ollman

A coalition of disability organisations is warning the government is on track to fail its target of having no young disabled people in nursing homes by 2025 and has called for a clear plan to achieve the goal recommended by the Royal Commission into aged care.

Meet Maha, who recently joined the NDIS. Maha shares her experience and why she chose to make a submission to the NDIS Review.

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 Welcome to our new-look bi-monthly newsletter – Summer Foundation Focus.

While we may have a new name for our newsletter, our focus very much remains the same. We exist to get young people with disability out of aged care and into appropriate homes. 

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More than 10,000 younger people died in residential aged care over the past decade, new data shows.

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Photo: Wayne Taylor

Fourteen-year-old Xavier Edwards became a quadriplegic when he was involved in a bike accident in April 2022. Xavier has spent almost a year in hospital, despite being ready to go home since January. The situation is made worse because Xavier and his family live in Echuca/Moama and Xavier is in hospital in Melbourne.

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Over the past 6 months the Summer Foundation has been focused on engaging with residential aged care (RAC) providers to assist them to support NDIS participants in their care.

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We first met Daniel almost a decade ago, when he lived in a nursing home. Last year, Daniel moved into his own SDA apartment.

Tell us about yourself

I’m 57 years old and have cerebral palsy. I’m a Richmond Tigers fan and in my earlier days was passionate about martial arts. I love spending time with my family, friends and, of course, my cats. I’m passionate about my advocacy work and hope it improves other people’s lives.

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Our UpSkill initiative, offering NDIS training and resources for professionals assisting people with complex support needs, continues to expand.

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The Summer Foundation secured 2 significant research grants in February.

A La Trobe University/Summer Foundation team received an Australian Research Council (ARC) grant for a 3-year project investigating the lived experience of people with a disability moving into specialist housing.

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We first met Connor during the more than 2 years he waited to get the right SDA approval in his NDIS plan. Late last year Connor finally moved in to his own apartment.

Tell us about yourself

My name is Connor Brookhouse and I am 19 years old. My disability is called Friedreich’s Ataxia. I love animals and video games. I am now living independently in an apartment, but I was living at my mum’s house before I got SDA funding.

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Source: The Australian – Sarah Ison

More than 10,000 younger people have died in residential aged care over the past decade, with new figures prompting calls for the government to implement ambitious timeframes to get ­people under 65 out of aged care and into suitable accommodation.

We first met Daniel almost a decade ago, when he lived in a nursing home. Last year, Daniel moved into his own SDA apartment.

Tell us about yourself

I’m 57 years old and have cerebral palsy. I’m a Richmond Tigers fan and in my earlier days was passionate about martial arts. I love spending time with my family, friends and, of course, my cats. I’m passionate about my advocacy work and hope it improves other people’s lives.

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Source: The Conversation – Di Winkler

The National Disability Insurance Scheme (NDIS) was designed to be a market-based system that would shift power from government and providers to consumers.

The NDIS Quality and Safeguards Commission’s Own Motion Inquiry report demonstrates that for the most vulnerable NDIS participants, there is still a power imbalance, with providers and workers still in charge.

Last year we began working with Samar. Samar shares her experience of moving into SDA and explains why she wanted to share her story.

Tell us about yourself

I’m an independent woman, I have cerebral palsy. I live in an SDA apartment, which has been a real life changer for me. I am a disability support worker trainer and I share my lived experience with other projects as they come along. I like to support people with disabilities and hopefully my experience helps others.

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As we wind down after an especially busy year the time is right to reflect on our work and achievements.

There has been significant change in the disability sector in 2022. A change of government, a greater focus on the NDIS than arguably ever before in the community and now the start of what feels like a new era for the NDIS with new leadership and a scheme review. 

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